dear jack: one

Dear Jack,

Today you are one. You said “mama” to me yesterday, looking straight at me, babbling it over and over and over as you pivoted in your trademark style, tried to turn over the trash can, unplug a light and topple a bookcase. This morning we went outside – the air is finally cool and light against our skin – and you stood up on your own on the sidewalk and looked at me defiantly. You’ll take the step when you want to, and you want me to understand that clearly.

Before you were born, there was a lot we didn’t know. We didn’t know what it meant to have only one eye and ear. We didn’t know what cleft surgeries were like, the stiff smell of sanitizer in the room where we waited for you to come out of surgery. We didn’t know the particular beeps of oxygen saturation monitors, when they dip a little low, or too low.

But I talk about that a lot, don’t I? And today, on your birthday, I want you to hear what we did know. What we have always known.

 You belong.

We always knew that. We knew that in the first search for your heartbeat at 9 weeks, the first ultrasound at 12 and the second that become the next seven. We knew that when I was sweating through the fetal MRI, and when we drove back and forth to the hospital. We knew that through timid genetic counselors and surgeons and phone calls. We named you and we knew you. You belonged from the beginning, and we belong with you.

You know what else we knew, buddy? We knew that a different body doesn’t make it a broken one. We told you – did you hear us back then? – that you are the very fullness of the image of God and Jesus rises with his hands and feet and side split and opened and these are what the world calls broken but we call glorious. You have always been the fullness of that image.

We knew it then and we learn it from you every day. And we learn to keep electrical cords and breakable cups out of sight, that the trash can in the bathroom makes the best drum, that it’s better to ride in the big laundry basket and that our laughter is funny enough to laugh at.

All this ordinary glory.  One year doesn’t seem like enough time to contain it all. Time itself seems to have stretched to make room for all that you’ve given us.

One year ago, you took your first few breaths. John the respiratory therapist helped you, but you pulled your breathing tube out on your own when the nurses weren’t looking. And every day since, you’ve lived fully and unapologetically and determinedly, and you’ve pulled out trach and gtube and laughed at me while doing it, you’ve learned to sit up and stand and crawl and almost walk even though they said you were “disenfranchised” and you never look back unless to check that we’re keeping up. You pull us into the gift of your life. There won’t be enough words for it, maybe ever.

When you were born, you took all my old life away with all its old thoughts and fears, all its questions, and those first few breaths, you gave me back a life that’s bigger.

I’ve always loved you with my whole heart. One year in, Jack, I love you with the whole heart that you’ve made wider.


dear jackson: the work on the ground

Dear Jack,

I have begun so many letters to you. Each one drifts away from me in the busyness of joy, this business you set me about, to be your mother, to become your mother. Day in and day out, you set me back on the ground, back at the beginning. You are learning to sit on your own, and you always turn back to me, grin widening to let me in on the secret – that all the work begins here on the ground. You turn back to your toys and you press the button one more time, the music comes back on, you clap your hands, we repeat.

All the work begins here on the ground.

This was the time, last year, of my first letter to you, named as you are, Jacks, Jackson, Jack. More often we call you buddy. Most often we call out to you with our laughter, and you call us with yours.

Last year I told you that you might need a little help breathing and eating. That was true, but last year it was so new and we pricked our fingers trying to hold all the hard words at once, searching the damp and crinkly pages of the ultrasound for answers. It was rushed and we were trying to be unafraid for you. I want to reach back to me then, I want to reach back with you and your laughter, your smile that is wide enough for past and future, for a world good and difficult. I want to reach back through the folds and wrinkles of time to tell her that it is you, learning to sit on your own, who can make us unafraid. That it will be you teaching, not me.

This time last year I wrote to you, afraid as I was that we wouldn’t begin on the right foot with the right language with the right protections around you. This time last year I thought my skin and muscles and bones weren’t enough to keep you safe in the world where most people have never examined a stoma in a neck, where most people don’t know how a barium swallow study is performed, where to have only one eye or only one ear is to beg a question – “So someday, will he look normal?” This time last year I thought I was to stand in the gap, stretched far and wide like the thin coils of wire that hold up bridges. I would be the wire and the bridge, I would be the guard and the keeper, I would be safety, salt and light.

I imagine someone might think I’m telling you too much about myself, the ways I thought, the things I feared. But transformation’s not a work I want to hide from you, not anywhere, and I’m in a chrysalis too, little one, and you should know how much of me God keeps changing.

I wrote you a letter May 9 last year, afraid to fail in giving you exactly whatever was right to give you. I was up high above the ground, whispering over and over, making rope and a bridge out of Jesus’s words, take heart, it is I, do not be afraid. But here you are, calling me to the ground. All the work begins here on the ground, here where we take off our shoes. I wanted to build you a bridge to keep you from what I feared was a dangerous world, a dangerous life.

Instead you have brought me to the ground of your life, you have set me to work unraveling the rope I wove so tightly, fear coiled inside it. You have set me here, among your favorite toys – Sophie the giraffe and the multicolored hedgehog, your zebra blanket, the orchestra turtle – and here I see how you haven’t needed me to build you a bridge or carry you away, you’ve just wanted me here sitting with you, clapping and singing and making animal sounds, doing it all on repeat.

It is impossible to write, Jack, what you’ve taught me, but the closest I can come is to tell you that I am here on the holy ground of your life unraveling a bridge I didn’t need to build, neck deep in love with the self you’re becoming. You lift up your arms to meet mine and we laugh. We reach back to a year ago, we pull that woman down to the ground with us, to pull her into the holy, into the good. You reach around for another toy to shake. You laugh again.

All the work begins on the ground, buddy.



dear jackson: you show me Jesus

Dear Jackson,

You’re in six month pajamas tonight, and I can see that the feet are far too big for you, the little husky puppy faces on the ends dangling helplessly where your toes can’t quite reach. You’re growing so much, buddy, that I can’t really believe that we were in the NICU all those weeks ago. I just wrote down “months” and erased it, because this is the truth – time has changed for us. Hours are days and months are minutes. I think this is what they try to tell you when you become a parent – time reshapes itself in the midst of you.

You’ll know this yourself someday, I imagine. For now, you’ve been out in this wild world with us for 10 weeks, and you’re sleeping, hands up by your face the way you always seemed to sleep those long months on the inside. I looked at those ultrasounds again (do you remember any of that? The echoes of strange voices talking to me and Dad about you? Did you ever shake your head, at how little we all knew of the mighty person you already were?) yesterday.

There is no picture of you I do not find remarkably beautiful.

In those days, a decree went out from Caesar Augustus. All the world, to be registered. This is one of the beginnings of the story of Jesus.

There are many, though. There is the beginning with Mary and Gabriel, the Holy Shadow, the be it unto me. There is the beginning with prophets who cried out in wilderness and desert to make straight a highway for God. There is the beginning song of creation, the Word by which everything was made

This is the season where we begin the story, where we prepare, where we make ourselves ready

I want to tell you something about Jesus, Jack. But who am I to tell you anything about Him? You know Him. You know Him in a way I have forgotten, with your one eye scanning the world, always looking for Him, always eager, always anxious for another sighting, another glimpse.

And then there you are, in the midst of the world where you are looking for the answer to your being here and the world being its beautiful self, and everyone who looks at you sees Jesus. You show Him to us.

Oh, how you show Him to me. Every minute.

Someone might think it’s because you show me something about weakness or vulnerability. Someone else might think it’s because you needed a trach and a feeding tube and it was so hard and I had to believe that God had good plans in spite of or even in the midst of.

But you, Jack, you show me Jesus risen in glory and power. Jesus whose love is wild and unyielding. Jesus who walks the hallway of the NICU. Jesus who reigns in operating rooms and who comes in the might of other children who kneel the afternoon of your surgery to pray.

You show me that Jesus is King and always has been.

What can I say to you about Jesus? In those days, a decree went out. An annunciation was made, and a visitation. There was a leaping for joy by John, after whom you’re named (your names mean God has been gracious. But you already know this).

When you open your eye in the mornings and smile at me, creasing your NAM tape, when you kick your feet up in the crib and toss your body back and forth as you reach for the toy fox, for your reflection in the mirror above your head on the play mat – you show me Jesus.

In those days, God announced that He was sending you to us. In those days, God announced that you had been formed differently, that what nature often does it hadn’t done the same way in you. In those days we walked, you and me, down many of the streets of downtown Waco, and in those days we caught glimpses of you – black and white, three-dimensional, printed on computer paper and clutched on the long ride home – and in those glimpses we knew. I know you, I would whisper over and over when I passed the fridge where your pictures hung. I know you, I would shout in my heart when the technicians swirled the ultrasound wand around my belly, looking for what makes you different, looking for a diagnosis. I know you. 

You show me Jesus, Jacks. Risen in glory and power, coming to us palms open, scars lit by the same glory, wound open so that we too can put a hand inside and touch the wonder of His work and rescue. You show me Jesus who comes in those days when the decree goes out.

You show me Jesus, who holds you in those glorious scars and pours His love through them over you, and through you over others.

In those days a decree went out. This is the season where we remember, where we tell the story, where we prepare for Him who is coming to live with us. And you, Jacks, you are leading me.


when this is fifteen months of gratitude

I hear him sing to Jackson over the hum of the suction machine. He gives me the gift of a long shower – take the time, Hil – and he scoops up our growing wonder of a son and they are off, dancing into the nursery, one or two quick passes with the suction catheter and back out to the living room, to the record player, to the lights on the Christmas tree and the windows that look out on the world he insists is more beautiful than I reckon it.

I am thinking these days about my husband.

I am thinking about how they tell you marriage is teamwork and then you learn it walking hallways mid-disagreement, mid-misunderstanding, and you knock on the door to your son’s NICU area and you transform. You pause the conversation, pause the disagreement, and you walk the space of knowing your son. You walk the space of trach changes and whether or not to up his amount of milk per feed. You walk the space of who will hold him, who will suction him, who will prep and clean up after the small extra things we do to love on this growing wonder. You walk the work of language, how we will talk about Jack, how we will ask others to talk about him. You walk the silent wonder at how many more people understand than you ever thought would.

I am thinking about how they tell you marriage is a great unfolding, a mystery, how you don’t know who it is you married until you are already past the aisle, the vows, and into the world.

The first time I Skyped with my husband I fell in love with him. He was sitting in a bistro, headphone cord dangling, and drinking coffee. I was drinking iced tea from our grocery store terrified that I wouldn’t seem casual enough. I was wearing running shorts and an old T-shirt; he’ll think I’m very athletic, that’ll be good. I talked too fast and not fast enough. One hour became five, the bistro closed, he called me on his cell phone from his driveway.

I couldn’t have told you then we’d have a son named Jackson who would bring us to the NICU in Temple for forty days. I couldn’t have told you then that we would learn how to care for a tracheostomy, that we would number hours and weeks like stars. I couldn’t have told you, staring at my computer screen one hot July night, that I would sit in the kitchen the first Sunday of Advent crying because I’ve never known someone to love so unapologetically.

You don’t know who you married until you do. And even when you do know, looking at a senior boy from Baylor in your computer screen late on a July night, you learn it for the first time every time.

This is a post about gratitude.

He remembers what day the trash collection is. He remembers what is in the fridge and in what order the leftovers can be eaten and recreated. He knows how to make Jack smile as they dance to the record player, to the Christmas tree, to the windows. He knows that this world is more beautiful than I reckon it most days. He knows to tell me that.

It is the first Sunday of Advent. I’m sitting in the kitchen while it rains outside and Jack sleeps nearby.

You don’t know who you married until you do. And you learn them again and again. And they will take your breath away.


this is what I’m waiting for.

Dear Jackson,

Your godmother asks what I’m looking forward to about you. She asked as she was holding your soon-to-be friend, her sweet daughter. I was staring, lost for words, worrying, making those lists in my head with big words like NICU and surgery and MRI and cranio-facial team – all those words that if I am honest, just mean the people and the tools that are in place to help you and me and Dad as we begin our life together. They’re just words for the friends and things that Jesus is bringing with Him in this wonderful season of your arrival.

But I was running short on words, a little scared, and right then, you kicked me. You have such a personality, little man. Mom, I’m here. I’m okay. Every day when I start to worry, and I stop and put my hand over you, you kick back. Mom, I’m here. I’m okay. 

We have read a lot of the stories of Jesus’ healing power these last few months. You know about Jairus’s daughter and about the son who Jesus raised from the dead. You know about the woman who reached out in the crowd, just to touch the hem of his robe, and she was healed. And all those crowds, after Jesus walked on water, who just touched him, and were healed.

But one of my very favorite stories to tell you is the one about Zacchaeus. Remember him? He was so curious about Jesus – like most of us are – that he climbed up a tree to get a better look. The Bible says Zacchaeus was a tax collector and very rich. This tells us that Zacchaeus was probably not a very just man, who was unfair to others in the city, who did not treat them well. He doesn’t really seem like someone that Jesus would hang out with.

But Jesus sees him and comes to the tree where he is sitting. And guess what, Jack? Jesus says, “Zacchaeus, hurry and climb down, for I must stay at your house today.” What do you think about that? He sees Zacchaeus, hiding up in the tree and he tells him to hurry, climb down, because I’m coming to your house. Jesus isn’t just able to see where Zacchaeus is hiding, but Jesus wants to be with him. Jesus is going to stay at his house.

Zacchaeus is so overwhelmed and excited that he scampers down the tree and is happy to welcome Jesus. And he says to Jesus that he will make right the things he had done wrong – he will pay back people he had treated unfairly. He will give half of everything he owns to the poor. And Jesus tells everyone there, “Today, salvation has come to this house… For the Son of Man came to seek out and save the lost.”

There is so much I want to tell you about this story. But right now what matters, Jack, is that sometimes I have been a little like Zacchaeus hiding in the tree. I have been scared to come down from my worrying to welcome you because I have been so scared that I won’t be able to be the mom that you need me to be. I have been scared that maybe I won’t be good at this or ready, that I will do things wrong.

But then I see Jesus standing at the foot of that tree holding you, and Jesus tells me to hurry, climb down, because you two are coming to stay at my house. You are coming to be with me. And when I hear that, and I see you and Jesus standing there, I climb down and realize that I am so happy. I am so excited for you, just like Zacchaeus was so excited about Jesus.

Jack, my little man so fully alive:

I can’t wait to hold you. To sit with you and reading you the books our friends have been sending you – Ping and James Herriott’s Treasury and The Going to Bed Book and The Mitten. 

To sing and dance around the kitchen for so many years that even when you’re 22 and you come home after college and you think I’m ridiculous, you’ll still join in.

To put you in the wrap or the carrier or the stroller or the whatever-baby-gadget-we-get and showing you the world. I’ll show you the leaves and their greenness, the water and the ducks that swim along the Brazos in spring. I’ll show you the big sky on our drive down 7. I’ll show you the cows, the wild orange and blue and purple flowers in April. I’ll show you the lilacs in Boston outside Grammy and Granddad’s house.

To introduce you to your aunt and uncles and cousins – they’ll show you the paddling pool and how to toss a football back and forth and probably how to get into mischief, too. I hope they teach you that.

To hold you. I already said that. But I’m so excited for that. Just to hold you.

Hurry, climb down, for I am coming to stay with you today. Jesus is bringing you with Him, Jack. He is bringing you to me and Dad. I can’t believe that we get to hold you, laugh with you, rock you to sleep, teach you about leaves and ducks and cows and the good things Jesus made.

I’m not hiding in the tree anymore. You and Jesus, you are waiting for me. You make me too happy, too overjoyed, too excited, not to scamper down.


this can carry us

I learned to pray when I learned to drive. Those smooth, familiar backroads, at age 17 too hasty in hoping to be older. At the stoplights where even now I do not notice how I know where I am going, I just turn, left, then right, then right again. I learned to pray driving past the old white house covered with vines and lilacs that only bloom for a week, a glorious hidden week in May, the kind that sneaks up upon you and shatters your resignation with joy. I prayed the unconventional hours: early morning requests and questions, the late evening thanksgivings. Often, I repeated this: I love you, Jesus. 

When I slink into the driver’s seat, even now when I go home to visit, I feel the pull of those hours, the richness hidden in rhythm and repetition: I love you, Jesus. I remember the drives, keeping those hours, the expectation, the simplicity. The lilacs bursting forth against the old white house.

These hours keep me praying in the long summer of expecting my first son. These hours keep me, my younger self’s prayers, ones about God’s glory being revealed to me, or the fullness of God’s wisdom being shown to me, or the love of Jesus, my younger love of Jesus. These hours keep me, praying somehow still over me from the week of bursting lilacs to the week of driving to Temple, of learning about Jackson, of new glories.

I have wanted to write about praying for Jackson, but the truth is, it’s really the old prayer I’m praying, that the Spirit is praying in me and for me: I love you, Jesus. I find you so beautiful. 

My son knows my voice. This overwhelms me, since so much of the day I am quiet. We talk in snatches, I tell him about what I’ve been reading, I tell him about his cousins, his grandparents, how much love is waiting for him. I tell him about his doctors, too. I tell him that he will love them, that they are helpers, people God gave special gifts to for helping kids heal and grow and be strong. I am telling myself all these things.

He hears about this ordinary life all day, carried around inside me with his fierce, strong spirit: he hears Preston read One Hundred Years of Solitude, me proclaiming my craving for red velvet cake and ice cream sandwiches, my laughter with his dad, our plans for crepe myrtle trees and a backyard garden and a library of books just for him. And he hears me on the couch or the bathroom floor, some mornings getting dressed, how those are sometimes hard moments in my expectation. How I cry sometimes because I am new at this, new at even the very act of becoming a mom, becoming his mom.

So the old prayer, the lifeline – I love you, Jesus.

He hears that, too.

May this be the forever thread running through our days together: I love you, Jesus. 

I love you with the first light slinking through the blinds, with long hours of reading, with appointments and ultrasounds and so many pictures of Jackson as you are forming him. I love you when I pray laughing or weeping, or both at the same time. I love you with the bursting lilacs all those years ago, the first hours set down, that resound now. I love you with everything in me that is unfinished – with the poem that that line comes from, Robert Bly, I think.

I love you, Jesus. 

This is the well-worn prayer. This can carry us.


tonight, welcome the wonder

Dear friend,

There is a scene in Marilynne Robinson’s Gilead I want to remember with you.

After a while the baby cupped her hands and poured water on her mother’s arm and laughed, so her mother cupped her hands and poured water on the baby’s belly, and the baby laughed… The baby made a conversational sound and her mother said, ‘That’s a leaf. A leaf off a tree. Leaf,’ and gave it into the baby’s hand. And the sun was shining as well as it could onto that shadowy river, a good part of the shine being caught in the trees…

After a while we went on back to the car and came home. Glory said, ‘I do not understand one thing in this world. Not one.’

I can’t read this without tearing up. That sunshine and the shadowy river, the baby laughing, the leaf and the ordinary unconscious teaching of the wonder of the world, in a muddy bit of a river in Iowa. How can I not cry? That sunshine. That teaching. That wonder.

It’s the day before Christmas, and I am caught up in the ordinary wonder of today. There is sunshine through trees, and my father-in-law and I spent a morning drinking coffee and looking out big bay windows and talking, our minds wandering new and familiar paths and it is that, the making of memories of laughter and wisdom shared and questions asked, in the unhurried way of daily life – that is the wonder of Christmas. That is the wonder we are welcoming in this moment, in this night. We welcome the wonder of new life, Heaven colliding irrevocably with earth. We welcome a baby, who bears our flesh, our ordinary, who is now in the midst of us and among us and in us.

How can I not cry? We welcome the wonder of all wonders. Not apart from the ordinary, but entering the heart of it.

I sing Christmas carols around the house when I clean these days. I don’t notice it all the time, but then suddenly I do: the same wonder, the rhythm of the cleaning of the floors and of my heart, too. I sing Christmas carols loudly and without worrying about managing all the right notes in the original key. I sing these stories loud. Something about the soapy water and the quiet and the ordinary work that never ceases: this is the work of wonder. The task of it, to repeat it in the midst of everything.

Tonight, we welcome the wonder of all wonders, the Lord of Heaven come to earth. We do this work of welcome in the middle of being so very much ourselves. I am myself, 24 years old, young in marriage and love and wisdom, me, the desperate seeker of a wilder love. I am welcoming Jesus as me, because Jesus comes for me. I am welcoming Jesus in the midst of my ordinary, singing Christmas carols with the Swiffer in hand. I am welcoming Jesus crying over Gilead. In the heart of the ordinary, the extraordinary enters in.

Come with me even unto Bethlehem? Bring your ordinary, your uncertainty, your wearied heart and hands and self? Even unto Bethlehem?

Tonight, the wonder of all wonders is born. Come with me, and greet Him?